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Living with Carcinoid Syndrome

Many people with carcinoid syndrome live with the symptoms for years before getting an accurate diagnosis. That's why, for many, the diagnosis itself comes as a relief. It means that you can finally talk to your doctor about how to manage your disease.

Non-carcinoid tumors can cause symptoms similar to those of carcinoid syndrome. These can include tumors in the duodenum and the lung. Another such tumor is called a VIPoma. If you have carcinoid syndrome, or diarrhea caused by a VIPoma, it is important to visit your health care provider regularly. Your health care provider will also explain your treatment options.

In this section of the site, you'll find information about:

"I can truly say I had
symptoms 10 years
before my diagnosis.
But carcinoid was
never considered
a cause." - Carol-Anne